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This space is aimed at moms and dads with children with Rubinstein Taybi syndrome, or, for any mother or father who has a child with difficulties and needs help, support, guidance, or simply to be heard.

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It was a long time before, as a mother, I felt understood in my paradoxical feeling of love / pain; happiness / distress; hope / fear.

Despite being lucky enough to have a wonderful family; iron friends and first-line doctors, it was not until I had the opportunity to speak with another mother that she experienced what I experienced, that she felt what I felt and that she lives her life overcoming challenges of all kinds with her son constantly as well than I, who could feel truly understood.

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From that moment on I felt lighter, more accompanied. I didn't feel so scared anymore. Realizing that the same thing happens to others, that they have the same uncertainties or concerns, was a before and after. You know it, but being able to share those doubts, those experiences, those fears or simply consultations with another who listens to you as equals, made a difference for me.

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Today I feel that this is my mission, to make other parents feel that contention that I felt. Feel that relief knowing that you are not alone; that they can express their emotions, their fears and share them with others who walk the same path.

We are going to create this network together, to help us be the best parents we can for our beloved children, who undoubtedly deserve it. And also so that each mother and / or father who is part of this network can feel more and more strengthened and more accompanied.

I also propose as a goal to summon the professionals that I had the opportunity to meet throughout these ten years and who have given us their professional and human support whenever we have.

We will publish articles, videos, or interviews with topics of interest.

And, fundamentally, what we need is for you to contact us and tell us about your experience. We are all the network. My experience can help you and your experience can help me.

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JOIN THE NETWORK!

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